Non-profit Categories:
Health, Disability Issues, Children & Youth
Description:
Our goals are to create a support group in every city so that parents and family have somewhere to get support from. We hope to bring awareness of these terrible things to the medical community who have hardly heard of these diseases. We hope to help families with counseling, food, clothing, shelter, toys, etc. that will make life for your loved one better. We hope to provide yearly conferrences so that all the families who have this disease can come together learn more and not be alone. We hope to help fund research that will hopefully lead to cures for these things. We hope to provide a way for families and loved ones to feel as though they have help when no one else will help them.
Our goals and mission are carried out through community knowledge, family conferences, annual symposiums, fund raisers, support groups, etc.
Mission Statement:
A for Cure for Bassen Kornzweig Syndrome Foundation is dedicated to education, research and support for Bassen Kornzweig Syndrome. We are dedicated to the diagnosis, treatment, and cure of Bassen Kornzweig Syndrome. We are dedicated to providing support to families and loved one of this syndrome.
We are dedicated to helping families with children who are affected by any rare disease, gentic disorder, or medical condition that is hindering them from having a long full life.
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4509 South Michigan Ave
Chicago, Illinois 60653
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